When I was little, I believed everything had a link to something else. Our lives were intertwined and nothing, nothing happened without a reason.
Everything had a purpose.
Losing the twins and hearing there wasn’t any logical explanation why rocked that belief.
I’ve wondered the past 18 months why my water broke but I didn’t go into labor for a week. Why I was made to hold onto them and they still lived that long with barely any fluid – only to pass away in my arms.
Then I had Kaden. And losing him – after two weeks of watching him endure medications, operations, and treatments most of us will never know personally about – that profoundly impacted my faith in every area. Especially knowing he would have been a perfect candidate for a heart transplant if they hadn’t found the HHV6 virus that caused delays, and eventually a consensus of it being too risky to chance another heart in him.
Leaving all of us, once again, asking why? What on earth could be a purpose behind this?
This past week we learned that because Kaden had the virus no one on earth his age seems to have ever had before, the CDC would like to open a case on him. We’re not exactly sure what it means, but we do know that we’re willing to move heaven and earth to find out if this is affecting other babies. Because what would have happened if we hadn’t gone to Children’s after the doctor hearing a gallop on his heart?
We would have taken him home and he would have died there. We would have never known about HHV6, although we may have found out about his weak heart ventricles. We would really and truly have never had an answer.
So we are hoping that his life serves this purpose. That because of him living, and what he went through, other babies may be able to live fully. And if he’s simply a small piece of that puzzle, that’s ok too.
Today Brickyard Buffalo is hosting a flash sale (24 hours) for us. Vendors have donated their prints, clothing, and custom work to raise funds. These three below are labeled “Stone Family Fundraiser.” We will be saving a portion of the other funds raised for our medical, memorial service, and extra expenses in Dallas for the same reason. For research, maybe a non-profit in his name. That’s something Sam and I feel so strongly about. If this little known virus is something that causes babies to just – die – we want to be able to have Kaden’s life help stop that.
These three vendors above are giving all proceeds today to us. We would love if you would consider purchasing and/or sharing about this so we can raise the money needed to put aside for this research. So that Kaden’s life might have a very visible purpose.
And thank you. Thank you for being a part of this for us. Again.