Today we had our 20 week ultrasound. This one truly was all about the baby’s health, we knew gender with the Verifi test at like 12 weeks, we’d had a pretty thorough scan of her organs at 18. One thing they couldn’t see were all the heart chambers. We were told it was normal, they’d check again in 2 weeks. She was only 7 ounces and bouncing around like crazy in there.
But still. With our history waiting two weeks was a little rough.
Thankfully, everything in her heart is in place and positioned ok. We’re still going to ask for a fetal echocardiogram to check blood flow, because Kaden’s heart was also great and then it just wasn’t. Nothing structurally wrong with his at all, simply the weakened valves.
So far though – everything is looking good.
Here she is!
She’s doing just wonderfully, we can all feel little kicks and rolls, and my cervix is doing great (no cerclage, no shots this time – due to not knowing what caused the ciHHV-6 virus reactivation).
In other news, we have learned the the HHV-6 Foundation is working with doctors to test different medications for ciHHV-6 activation. So far, they’ve discovered three medications taken in my pregnancy with Kaden that activate the HHV-6 virus. This is a really big deal, because while only 1% of the population is known to have ciHHV-6 (the kind in every part of your DNA passed down from a parent) – it’s thought to affect fertility, miscarriage, and still birth rates in each person who has this.
At this time, because it’s in the early stages and nothing has been formally published, I can’t say which medications (hopefully very soon as I know how stressful this is for me and I’m the one getting some info!). Please know if you have any concerns, that the best way to be tested for ciHHV-6 is through this link which allows you to take the info to your doctor directly. If you find out you do have this, get in touch with me or the founder of the HHV-6 Foundation Kristin to see what steps you should take. Keep in mind this is rare to have, and most doctors won’t know a lot about ciHHV-6.
I am working to raise part or the rest of the funds needed for one of the teams out of Germany performing this research. This is all grant money we are seeking, none of it goes to me – the research itself will be invaluable for generations to come.
Please, please consider donating and sharing this link: http://gofundme.com/dianawrote with your friends and family. Our story and a simplified version of what this is about is also on the page. Thank you so, so much to everyone who has donated and shared. Imagine the lives we can change when this condition becomes known about in medical circles. I can’t wait for that day.