• Kaden, ciHHV-6, and the Journal of Heart and Lung Transplantation

    January 17, 2017

    For the last 3 years, I’ve worked with the HHV-6 Foundation, Kaden’s cardiologist, and doctors in Germany and India to figure out why ciHHV-6 caused Kaden’s heart to develop with cardiomyopathy. They took samples from me, Bella, the twins’ umbilical cords saved by the hospital, and Kaden’s organs from his autopsy. They went through hundreds of…

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  • Elephants 

    January 10, 2017

    I’ve always loved elephants. When Bella was tiny she called them “Mums” because that’s how she made their noise. So when I was pregnant with Kaden, I made his theme everything elephant. Blankets, bins, sheets, clothing – it was all little (mostly) gray elephants.  Now anytime I see them, I think of him.  Today Char…

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  • Collide

    July 31, 2015

    We met with the neonatologist this week. She and the others were staffed by the high risk OB department on us, and they wanted to meet for more information on our case and explain what would happen should Charlotte be born from now until about 35/36 weeks. If you are a doctor/nurse/professional in a medical field…

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  • 20 weeks and ciHHV-6 Fundraising

    June 8, 2015

    Today we had our 20 week ultrasound. This one truly was all about the baby’s health, we knew gender with the Verifi test at like 12 weeks, we’d had a pretty thorough scan of her organs at 18. One thing they couldn’t see were all the heart chambers. We were told it was normal, they’d…

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