For the last 3 years, I’ve worked with the HHV-6 Foundation, Kaden’s cardiologist, and doctors in Germany and India to figure out why ciHHV-6 caused Kaden’s heart to develop with cardiomyopathy. They took samples from me, Bella, the twins’ umbilical cords saved by the hospital, and Kaden’s organs from his autopsy. They went through hundreds of…
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Elephants
ContinueI’ve always loved elephants. When Bella was tiny she called them “Mums” because that’s how she made their noise. So when I was pregnant with Kaden, I made his theme everything elephant. Blankets, bins, sheets, clothing – it was all little (mostly) gray elephants. Now anytime I see them, I think of him. Today Char…
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Collide
ContinueWe met with the neonatologist this week. She and the others were staffed by the high risk OB department on us, and they wanted to meet for more information on our case and explain what would happen should Charlotte be born from now until about 35/36 weeks. If you are a doctor/nurse/professional in a medical field…
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20 weeks and ciHHV-6 Fundraising
ContinueToday we had our 20 week ultrasound. This one truly was all about the baby’s health, we knew gender with the Verifi test at like 12 weeks, we’d had a pretty thorough scan of her organs at 18. One thing they couldn’t see were all the heart chambers. We were told it was normal, they’d…
{About Me}
Sam and I have been married since I was 19. He was 20. He's an OIF, medically retired veteran of the Army and Marines. We have 5 children - Bella was born in 2009 after a rather bumpy pregnancy and her first year was mostly crazy reflux. Preston and Julian, my identical twins, were born at 20 weeks in 2012 and lived only a few hours. Kaden was born full term in 2013 seemingly perfect, and at 4 days old he was found to have cardiomyopathy due to ciHHV-6. He passed away at 3 weeks old. Charlotte was born in 2015, and was a complete surprise to us. Each of them have changed our lives completely.
Currently I'm in school to become a counselor who focuses on trauma and grief.
I love Jesus - even though sometimes I get really angry and upset at the way our life has gone. I hope through my faults, insecurities, snarkiness, selfish nature, and general mess - my love for Christ and His work in my life shines through in my story.
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{Writing on}
